I spent the past week at UC Davis. Aggie college that treats more cows than people.
To say I was unhappy with the level of care I received would be an understatement. My questions went unanswered, I never did see my oncologist, I had three crazy roommates (one Mexican gangbanger type threatened me when I asked that his coughing and sneezing grandchild wear a mask).
My pain was never adequately controlled even though I complained about it. There was no mention of scans for my small intestines, even though they brought it up in the first place.
And to top that off, the resident that was put in charge of my case (Dr. Beelzebub) tried to blackmail me into have an unnecessary procedure so he could practice on me before he's let me go home. And then they examined a biopsy for cancer, and when none were found there (they may indeed be elsewhere) he declared a this excellent news to be no better than a 'mixed bag'. I has what the down side was and he said because they didn't know what to do with me.
Earlier, this fresh resident he told me in in best, pump-out-chest, brining his height to all of 5-8, that I had one month to live.
I told him I didn't want to ever be seen my him, ever again. He reported my impertant attitude to his superviors, who couldn't understand why anyone would feel this way.
Dr. Beelzebub would make a fine vet, perhaps, or a pest control inspector. Wait! scratch the vet..I wouldn't want a vet like that anywhere near my pet.
As far as things go, no closer to understanding what is going on now that before. Since I'm home, my pain is adequately controlled, I'm waiting to see Kipps again.
I'm beginning to see that Churchill was right about the Soviet Union: 'a riddle wrapped in a mystery inside an enigma.'
A Matching-Adjusted Indirect Comparison of Acalabrutinib vs. Zanubrutinib
in Relapsed or Refractory CLL
-
The Bottom Line:
Acalabrutinib and zanubrutinib have similar excellent efficacy in relapsed
or refractory chronic lymphocytic leukemia (CLL). However, ac...
3 months ago
4 comments:
Do not give up barry, knew someone well,who was in the same situation as you, she had also at various treatments including FCR, although she eventually lost her fight it was 16 months later .
She lived 16 months after the transformation to large B this is rare i know but do not give up.
Hang in there, Barry. For all of us! Praying for great doctors who find answers.
Barry-thank you for your posts. I am praying for you and hope that Dr. Kipps will have some good alternatives for you.
Post a Comment