tag:blogger.com,1999:blog-7771147278128226990.post6781983497735596742..comments2023-09-24T02:34:08.283-07:00Comments on The CLL Ranch: Another New YearBarry B.http://www.blogger.com/profile/16562498733714000836noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-7771147278128226990.post-86210657743651364852011-01-14T14:32:07.210-08:002011-01-14T14:32:07.210-08:00to 11qRick:
I understand your viewpoint. However...to 11qRick:<br /><br />I understand your viewpoint. However, I am seeing Dr. Kipps every month. I have an appointment in late January.<br /><br />He doesn't feel I need treatment at this time. When I do, I might consider something that is available outside of a trial, i.e. revlimid + rituximab. <br /><br />I just don't want to make my CLL 'angry' with another CT scan, and I don't want to do well on these latest CLL drugs, just to develop another cancer because of the CT scans, and kick the bucket while my CLL friends are basking in a new lease on life.<br /><br />Just how I feel.Barry B.https://www.blogger.com/profile/16562498733714000836noreply@blogger.comtag:blogger.com,1999:blog-7771147278128226990.post-36112908352129536942011-01-04T14:16:34.845-08:002011-01-04T14:16:34.845-08:00Hi...I was wondering if you would be open for some...Hi...I was wondering if you would be open for some email communication rather than through here. I've been following your journey, and I'd like to tell you about my dad's. He'll be 52 next month, diagnosed with CLL when he was 44.<br /><br />If interested...smw7676@gmail.com<br /><br />Thanks much...smw7676https://www.blogger.com/profile/15228657779266363288noreply@blogger.comtag:blogger.com,1999:blog-7771147278128226990.post-49974349946193138142011-01-02T08:51:36.122-08:002011-01-02T08:51:36.122-08:00With all due respect, I think that you should care...With all due respect, I think that you should carefully reconsider your position.<br /><br />To date your disease has caused you a good deal of difficulty and it appears very likely that it will soon be doing so again.<br /><br />The treatments that you have already undergone have caused much more discomfort than you would likely experience with CAL-101 and rituximab (though there are never any guarantees).<br /><br />This is NOT a contest of wills between you and those conducting the trial...they have criteria that must be met for them to properly conduct their trial as planned.<br /><br />With no therapy there is a good chance that your disease will progress and that you will suffer significant morbidity and or death in a time frame much shorter than any theoretical problems due to radiation from CT scans.<br /><br />I agree that there are no guarantees and also agree that no one should undergo unnecessary CT scans, BUT I personally feel that the risk is a great deal less than you seem to believe and in this circumstance (I believe) the upside of your entry into the study (CT scans and all!) far exceeds the potential downside.<br /><br />In any case, if you fail to respond to the CAL-101 and rituximab you can always drop out of the study and then you will not need to undergo further CT scans.<br /><br />Good Luck,<br /><br />11qRickAnonymousnoreply@blogger.com